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Patient Stories     

Real people. Real stories.

Elliott

 

 

 

 

Elliott Lee Aldrich started life with the odds against him.  Born on December 3, 1990, he was six weeks premature and had pneumonia.  Immediately, he was placed in intensive care.  Doctors prepared his parents for an uncertain outcome.  From the beginning of his life, Elliott showed the world what a fighter he was.  After just two weeks in the hospital, he was released to go home.  As he grew, Elliott spent the next 12 years of his life with a learning disability and severe speech problems, remaining in special education classes throughout his school years.  A month after Elliott's twelfth birthday, in January of 2003, the family was devastated when he was diagnosed with acute lymphoblastic leukemia, or ALL leukemia.  He spent the next several months in the hospital under the care of amazing doctors, in an effort to cure him.  The doctors' expertise paid off and Elliott went into remission.  He remained in remission for four years, until August of 2007 when his parents learned the devastating news that he had relapsed with acute myeloid leukemia or AML leukemia.  In addition to the AML, Elliott also suffered from myelodysplastic syndrome or MDS, a disease that affects the bone marrow and blood.  The only way to save Elliott's life was a bone marrow transplant.  There was hope for Elliott when a bone marrow donor was found who was a perfect match.  Elliott underwent the bone marrow transplant the day before Thanksgiving in 2007.  The next few months were very difficult for Elliott, and also for parents, as they watched Elliott fight for his life.  Two months after the transplant, Elliott came home; however, Elliott's physical condition was up and down from week to week.  His parents were heartbroken and felt helpless caring for Elliott.  Sadly, Elliott's health continued to decline, and he passed away on April 10, 2010 from a fungal infection.  Throughout the years of fighting the leukemia, Elliott received countless blood transfusions that allowed him more time with his family.  Elliott's parents, Cindy and Dan, lost track of  the number of transfusions Elliott received.   Cindy Aldrich expresses her feelings for Elliott, and the donors who gave so he could live by saying, "so many lessons learned from one of the bravest, kindest souls to have graced my life.  I thank all the donors, and his bone marrow donor, for giving us more time with our only child."

 

 

 

 

 

 

 

 

 

Coleson

 

 

After a trip to the Iowa State Fair, and a developing low grade fever, Coleson’s parents, Chelle and Doug, noticed that he was not acting himself and was alarmingly pale. Immediately, they took him to his

pediatrician to have him looked at. “We thought he either had mono (infectious mononucleosis) or was anemic,” Chelle said. Upon an initial exam, the doctor suggested that they go to Edward Hospital in

Naperville for tests. Within a couple of hours, and several blood draws, the phone rang in the exam room.  The doctor was calling with the devastating news that their 3 ½ year old son had leukemia. On August

18th, 2008, Coleson was diagnosed with acute lymphoblastic leukemia, or ALL, a cancer of the blood.  Within 30 minutes, the Arends were whisked into a critical care ambulance and transferred to another

hospital where a team of oncology specialists awaited their arrival. Two days later, intense chemotherapy began. This lasted eight months. During this time, Coleson was placed in isolation because he could not

be exposed to others for fear of infection. Additionally, he was given a total of 12 blood transfusions for low blood counts. Thankfully, after eight long months, Coleson went into remission. However, two years

after his diagnosis, he is still in the maintenance phase of his treatment protocol. Coleson has a chemo treatment monthly, a spinal tap every three months, and a daily regimen of oral medications including a chemo pill. After his monthly chemotherapy treatments, he receives steroids that make him miserable for the full week that follows. Coleson is responding well to treatment but still has a long road ahead of him.  He will complete his treatment in December of 2011 and the Arends look forward to that day of celebration! In September of this year, Coleson’s white blood count became very low and he spiked a fever, needing to be hospitalized for 3 days. He also developed 42 warts on his feet requiring surgery to provide him with some relief. With Coleson’s suppressed immune system it is difficult for him to fight any virus. He will start receiving IVIG (intravenous immune globulin) blood products monthly to boost his immune system and give him more fighting power. Coleson started kindergarten this year, and when he is able to go, loves his teacher and friends and everything there is about school. He has done his best to participate in T-ball over the summer and plays soccer this fall when he is well enough to do so. “He is a happy kid and the bravest person we know,” Chelle says.

 

 

 

 

Matt

 
 

 

 

 

 

 

 

 

 

   

On January 21st, 2010, after months of caring for his wife who suffered injuries from a head-on car collision, Matt’s life again turned upside down. While at his welding job at a fabrication shop, six tons of steel fell on Matt, nearly killing him. The horrific accident crushed Matt’s first four vertebrae in his lower back, broke his pelvis in four places, cracked several ribs, lacerated his kidney, bruised his lungs, and broke his ankle. Additionally, Matt had internal bleeding and bruises everywhere. Due to the severe trauma and injury, Matt’s kidneys failed twice, and he needed help breathing. To complicate matters, Matt was a Type 1 diabetic, and stabilizing him for surgery was no easy task. It was five days after the accident before he could have his first surgery, which was to repair his back. A few days later, Matt had a second surgery, this one was for his ankle. During this time, Matt was put on dialysis four different times to keep his kidneys functioning. Throughout his stay, Matt needed about twelve blood transfusions before, during, and after the surgeries he underwent for the injuries. After twelve days in ICU, Matt spent another three days in Critical Care, and then another four days in regular care before being transferred to a rehab hospital for three weeks. After Matt was released from the rehab hospital he went home to his 22 acre farm with his wife and continued to improve and get stronger, while going to therapy three times a week. Matt is hopeful he will be pain-free one day and get back to work. Matt’s family understood the importance of being a blood donor even before Matt’s accident. Matt’s dad, Arnie, has been coordinating blood drives in Johnsburg, Illinois for many years. Matt has twelve family members that donate blood regularly. His family is forever grateful for all the blood donors that helped him get back on the road to recovery.

   

Brandy

 

Brandy was 19 years old when her life dramatically changed. On November 30th, 2000, while on her way to karate practice with a friend, the car she was riding in lost control and smashed into a utility pole. The impact of the accident cracked the pole, and it came crashing down on the vehicle. The damage to the car was extensive, and utilizing the jaws-of-life, it took emergency workers more than 30 minutes to get Brandy out of the vehicle.  Once at the hospital, the doctors found that Brandy had suffered severe injuries. She had two collapsed lungs, broken ribs, a crushed skull, a shattered right wrist, her right leg broken in three places, broken hips, a broken back at L5, her pelvic bone split in half, a cracked collar bone, concussion, and her major organs were bruised. Brandy had more than 22 broken bones, over 150 stitches, and titanium rods in her leg to save it from nearly being amputated. In an effort to keep her alive from the trauma of the accident, Brandy received over 25 units of blood. The doctors told Brandy and her family there was a chance she would never walk again. Brandy spent just over a month in ICU and was allowed to go home just after Christmas. She spent 6 months on bed rest to let the bones heal, and then Brandy began 9 months of grueling physical therapy. It was through sheer determination and hard work that Brandy amazingly surpassed the doctor’s expectations and did walk again. A decade later, Brandy continues to have lasting effects from the accident. She suffers from chronic pain throughout her entire body, has just 45% use of her right wrist, and walks with a limp from her hips not healing correctly. The severe scarring on her lungs from being on a ventilator brought back childhood asthma. Despite the pain, nerve damage, scars, and limp, the injuries do not keep Brandy down. Her positive attitude is evident when she said, “I am thankful to be alive. I have 2 beautiful kids, a wonderful husband who knows my limits and is very supportive, as well as a loving family. I have a wonderful life.“

 

 

 

Jaime, Tanner and Trevor

 

 
 

Jaime was pregnant with twins when she began having complications with bleeding at just 17 weeks into the pregnancy. Cautious and concerned, Jaime was taking care of a two year old, and had just moved into a new home. At the 23rd week into her pregnancy, Jaime was fixing dinner for Juan and several men who were at the house helping with a basement project, when she again experienced some light bleeding. A gut feeling told Jaime to call the doctor immediately; she was told to go to the emergency room. That gut feeling very well may have saved the lives of her twins. Within minutes of arriving at the hospital, Jaime was experiencing massive hemorrhage, with contractions starting shortly afterwards. Due to the severity of the situation, she was airlifted from her local hospital to another that was better equipped to handle this type of emergency. Once there, Jaime immediately received a blood transfusion due to excessive blood loss. Jaime remained at the hospital on bed rest until the bleeding subsided at the end of week 27. She was discharged and sent home with orders for strict bed rest. Two days later, while on bed rest at her mother’s house, the bleeding started again. She was rushed to the hospital, and again she was given a blood transfusion and medications to stop the labor. Once stable, Jaime was airlifted to another hospital where they worked to stop her labor and keep her blood counts elevated. Continuous daily blood transfusions were given to Jaime until she delivered her twins 5 days later, at 28 weeks, on April 22, 2008. Trevor was born at 2lb 7oz and Tanner was 2lb 11oz. Trevor’s blood counts were low, and they gave him medicine to improve his condition.  Unfortunately, Tanner’s blood counts were much lower, and he required a blood transfusion within hours of entering the world. “Even after my twins were born,” Jaime said, “I was still receiving blood transfusions to get my blood count level back to normal. Receiving blood saved my life and the life of one of my twins. We are eternally grateful.” Because of their prematurity, Tanner and Trevor were in physical therapy and speech therapy from 1 to 2 years of age. Now 2 ½ years old, they are healthy, happy boys who enjoy wrestling with each other, and playing with their favorite toys - their matchbox cars.

 

 

Josiah

 

 

When Josie Jackson was 33 weeks pregnant with her son, Josiah, she received disturbing news: a routine ultrasound indicated that her baby had a problem with his aorta, that, if left untreated, could damage his heart. After little Josiah was born, further tests indicated Josiah had an even more serious heart problem, a condition in which the mitral valve causes blood to leak backward into the upper chamber of the heart. If left untreated, the condition could lead to a number of complications, including heart failure. Unfortunately, there are no mechanical mitral valves small enough for newborns. Within a week of being born, Josiah underwent an urgent surgery to correct the aortic abnormality and to repair the mitral valve. After surgery,

Josie was shocked seeing her tiny baby hooked up to all the machines keeping him alive. “I went home and prayed, because I knew my baby needed me to be strong for him,” Josie said. After a second partial repair of the valve, Josie was told her baby’s best long-term chance for survival was either a heart transplant or to wait until he grew large enough for a mechanical valve. Josiah was placed on the list for a donor heart. While still waiting for a donor heart, at five months of age Josiah had grown sufficiently for surgeons to replace his mitral valve with a mechanical one. The procedure was very challenging, but was a success, and Josiah was changed to inactive on the transplant list. Josiah also had heart rhythm problems from birth and needed to take multiple medications to maintain a normal rhythm. Josiah’s time in the hospital was prolonged after the medications stopped working. The condition was corrected with a catheter ablation procedure in which direct radiofrequency energy is directed to the source of the abnormal rhythm to treat it. A few weeks later, little Josiah finally came home, after spending the first 17 months of his life in the hospital. While in the hospital, he received numerous life-saving blood transfusions. Without these transfusions, Josiah would not have survived. Once home, Josiah underwent occupational, physical and speech therapy to help him catch up developmentally after being hospitalized for so long. Josie knows that Josiah will need additional mitral valve replacements as he grows, and a heart transplant is still a possibility, but for now she is enjoying watching him blossom day by day. “He is a very happy and busy little boy,” she says. “He is truly a joy.”

 

 

 

Jeffrey

 

 

 

 
 

The Czerak’s were so excited in September 2002, when their 5th boy joined their “team”. Their joy quickly turned to fear when baby Jeffrey stopped breathing in his father’s arms, just 2 hours after being born. Without delay, the doctors and nurses restored his breathing, and he was whisked away for further testing. Realizing he needed additional care, Jeffrey was transferred to another hospital, where he endured a cardiac catheterization to balloon his tiny aortic valve. Soon after this procedure, the Czerak’s learned Jeffrey’s heart was extremely enlarged and frail due to a heart defect known as Critical Aortic Stenosis. At just 3 months old, Jeffrey had to have a second cardiac catheterization. In stable condition and 6 months old, Jeffrey had his first open heart surgery to repair his abnormal aortic valve. Due to the impact of the surgery, the doctors explained that Jeffrey would need blood transfusions for the operation. The family was blessed to have so many family and friends offer to be direct donors for him. He received blood from his aunt, uncle, mom and a family friend. After this surgery, Jeffrey did amazingly well. The cardiologist said it was a miracle because his heart was so weak when he was first born. Jeffrey’s mother, Mary, said after the surgery, “we gave thanks each day while watching him grow and we cherished each smile and contagious giggle.” In September 2008, just before Jeffrey turned 6, the second open heart surgery was scheduled to make another repair to his aortic valve. This time, Jeffrey’s older cousins, an aunt, his dad and a family friend, donated blood for him. Unfortunately, bad news came in March 2010. Due to his abnormal aortic valve, the ventricle in Jeffrey’s heart was working twice as hard as it should, and Jeffrey’s team of doctors felt it was once again time for surgical intervention. The family prepared for surgery and lined up direct blood donors, and Jeffrey underwent his third open heart surgery. His cardiologist said that it was time to do the “Ross Procedure” - a more complicated surgery where they removed Jeffrey’s abnormal aortic valve then transplanted his own pulmonary valve into the aortic valve position. His pulmonary valve, separating the right ventricle from the pulmonary artery, was replaced with a homograft (human donor valve). Cardiologists will continue to monitor Jeffrey as he grows. He will eventually outgrow the donor valve and need to have it replaced. Jeffrey’s mother is comforted by the fact that “we know that if we cannot round up enough donors ourselves for his next surgery, there will be plenty of blood products available for him as there are many wonderful people who donate each day.”

 

 

Lauren

 

 

 

 

In the Fall of 2009, Lauren was an active and smart first grader when she broke her arm while hanging from a zipline at a park. During an

x-ray to confirm the injury, it was discovered that Lauren had a bone cyst present in her upper right arm near the growth plate. The bone cyst had weakened the bone, causing it to break with such little force. At first, doctors felt the cyst was a benign, fluid filled cyst. Using a “wait and see approach”, doctors discovered the cyst was not growing or changing.  Just 10 weeks after the first break, Lauren was on the playground at school and slipped on some ice. Unfortunately, another x-ray showed she had broken the arm again, and even worse, she actually crushed the bone.  An MRI was ordered, and much to everyone’s surprise, the cyst was an aneurysmal bone tumor. Although still benign, the tumor needed to be removed immediately. During the surgery, a biopsy was performed to confirm the tumor was not malignant. As doctors were removing the egg-size tumor, Lauren began to bleed heavily. She was given a transfusion of two units of packed red blood cells. The transfusion allowed the doctors to complete the removal of the tumor and gave Lauren another chance of being an active first grader. Lauren is monitored every three months with an x-ray to make sure the tumor does not return.  She is also very proud of her surgery scar and loves to show people “how awesome I heal”!

 

 

 

Taylor

 

 

 

In October 2007, when the Babec’s were getting ready to go on a family vacation, Jennifer Babec noticed a large lump on the crown of Taylor’s head. As Jennifer examined Taylor, she also observed the lymph nodes in the back of her neck were swollen. Taylor’s mother was shocked at how fast this lump appeared. She had been doing Taylor’s hair every day for school, and the lump seemed to have grown overnight. Immediately, Taylor was taken to the doctor. Within just a few days of blood tests, a CT scan, a spinal tap, and a biopsy, Taylor was diagnosed with lymphoma. The Babec’s were devastated with the news. Quickly, the doctors met to determine the best course of treatment. The decision was made to insert a catheter under Taylor’s skin so they could administer chemotherapy. Because chemotherapy treatments destroy malignant cells as well as healthy normal cells, Taylor needed multiple blood transfusions. Over the course of her treatment, Taylor was given a total of 22 units of red blood cells and platelets. Taylor’s mother, Jennifer, said “the blood transfusions made Taylor bloom like a flower. She would come into the hospital lethargic and leave full of energy after a transfusion. It gave her life, literally, and she felt her best after a transfusion.” Taylor’s little body also responded very well to the chemotherapy treatment. In June of 2008, after 7 long months, she finished her most intensive part of the chemotherapy treatments and started maintenance of monthly chemo for 2 1/2 years. This July, Taylor had one last surgery to remove the port that had administered all of the chemo to her little body. Because of Taylor’s cancer diagnosis, Jennifer Babec felt called to begin running blood drives with Heartland. Since July of 2008, Jennifer’s blood drives have resulted in 344 people donating blood to help save the lives of children like Taylor. The reason she does this, she explains, “it’s an easy way to give back to the community because they were there for my daughter. I have family, friends, and people I do not even know come to every blood drive.” Taylor is now in remission. Although there is a 50% chance the lymphoma could come back within the first year, the Babec’s have faith that it is behind them. Her mom describes Taylor as being “very active, making up for lost time with Brownies, gymnastics and cheerleading. She is the center of all the kids laughing and having fun.”

 

Andy

 

 

 

Andy, the first of 3 children, was born on February 1, 1993. His mom remembers him as “the perfect baby boy”.  However, at three years old, his mother began noticing changes in Andy. “He became crabby, slept more, ran fevers, and I started noticing bruises on his body. Andy was not the active little boy we used to have”, his mother said. After undergoing numerous blood tests, Andy’s family received the devastating news that Andy had Acute Lymphoblastic Leukemia (ALL), a cancer of the white blood cells. In April of 1996, Andy began treatment for his cancer, which included chemotherapy and blood transfusions. Two months into his treatment, Andy had a reaction from the chemo, which left him paralyzed. Sadly, in 1999, Andy relapsed, and was diagnosed with testicular cancer. Andy received radiation and more chemotherapy, but through it all, Andy continued to go to school. In April 2000, Andy had yet another set back. He was diagnosed with Guillain-Barré Syndrome, a rare disorder which causes the immune system to attack the peripheral nervous system. Andy was hospitalized for a month, and was transferred to a rehab hospital for two more months to regain his strength. Barely recovered, at nine years old, in October 2001, Andy relapsed and the leukemia came back. To keep the white blood cells in his body, Andy was given one and sometimes two blood transfusions every day from anonymous blood donors. The doctors said he would need a bone marrow transplant to save his life. It was truly a miracle that Andy’s sister, Alexis, had her cord blood saved, and it was a perfect match. On February 14, 2002, two days after Andy received Alexis’ cord blood, he underwent surgery to receive her bone marrow.  Life was good until Andy’s cancer returned for a fourth time, in January 2010. This time it was thyroid cancer, caused by the full body radiation he received during the marrow transplant. Andy had surgery to remove the thyroid, followed by radioactive treatment. In the fall of 2010, Andy will be a senior at Crown Point High School, and will graduate with honors. Andy has played wheelchair basketball since the age of 10, and now plays for the Rollin’ Hoosiers. Andy is also very active with the youth group at his church and other community activities. Andy’s mother expressed her thanks to blood donors by saying, “we are so thankful for all the generous blood donations from people. It saved Andy’s life”.

 

 

 

Nina

 

 

When Nina was 20 years old, she was at a friend’s house, unaware that in a matter of seconds her life would change. Suddenly, there was an explosion in the basement, causing a fire, and Nina was unable to escape the flames.  On fire, Nina somehow managed to make it up the stairs and into the yard.  Remarkably, she was able to make a call from her cell phone to her sister Natalie and spoke these chilling words her sister will never forget, “Natalie, tell momma I’m on fire, please help me”. Nina then ran to a pool in the yard and jumped in to put out the fire. The fire had covered 47% of her body, including her hands and face. She was rushed to the emergency room, and was immediately given a blood transfusion to save her life. Concerned about infection, doctors ordered that Nina’s entire body be wrapped in bandages

from head to toe. Knowing the pain would be unbearable, the doctors put Nina in a chemical coma for 6 long months with hopes that she would recover. Being one of seven siblings, Nina had a lot of family by her bedside while she was in the coma; talking, reading and playing music. The day Nina woke up from her coma was an emotional and joyous day for her family. The oldest sibling, Linda, describes Nina as “quiet, sweet, and kind-hearted.”  Linda also said “I know that without that blood being available, or the wonderful blood donors who gave their time and blood, my sister may not have had a chance. Nina is 24 years old now and we all continue enjoying life with her. For the past 3 years, I do my best to take the time and donate.  I do this because someone in the world did the same and it resulted in saving

a life… my sister’s.”

 

Ashley

 

 

Ashley was a normal 15 year old when she began suffering from severe back pain. When the back pain did not subside after a few months, she decided to go to a chiropractor. Thankfully, the visits to the chiropractor did give Ashley relief from the pain. After about a year, the pain came back, but this time it was even worse than before. It was painful for Ashley to walk, she couldn’t run, or do many other normal daily activities. After months of enduring more pain, Ashley’s chiropractor did a side x-ray, looking for some type of clue. The results of the x-ray showed her tailbone was disconnected from the last bone in her spine. The chiropractor immediately referred Ashley to see her primary doctor. Ashley’s primary doctor had never seen anything like it before; and referred her to an orthopedic surgeon. The orthopedic surgeon had never seen an actual case such as this, only in textbooks. The surgeon ordered a CT scan as well as an M.R.I., and referred Ashley to a pediatric spinal specialist who recommended her to have a lower spinal fusion surgery as soon as possible. He also told Ashley that, because her tailbone was severely displaced, without surgery she could become paralyzed from the knees down. Ashley and her family wasted no time scheduling the surgery for August 19th of 2009.  Ashley was told that she should donate her own blood in case it was needed during surgery. That was when Ashley first learned of Heartland Blood Centers. By the time Ashley went for pre-surgery tests, she was in such agony; she was unable to sit without throbbing pain. It was then the doctor told her that if she did not have the surgery soon, she would be paralyzed in less than a year and lose all bladder and bowel control. Ashley had the surgery and was in the hospital for a total of 6 days.  In the days preceding the surgery, she endured a lot of pain, despite the pain medication. Once home, Ashley began the healing process, and her back pain slowly subsided. In the fall of 2010, Ashley was able to rejoin the marching band and join the culinary program at her school. She can now walk without pain, and can even run; two things most teenagers take for granted. Ashley feels her biggest lesson learned through her ordeal is “I have realized from all of this just how important it is to donate blood. And that is why I am now a member of the Four Seasons Club at Heartland Blood Centers.”

 

 

 

Don

 

 

Don and Patricia Marks were married for 51 years and were blessed with two children and three grandchildren.  Sadly, in August 2009, Patricia passed away. Five months later, Don was still grieving from the passing of his wife when he suffered a heart attack. After being hospitalized for the heart attack, doctors realized Don was bleeding internally. For the next three months, Don was in four different hospitals and spent most of his time in intensive care units. The doctors could not identify the source of the bleeding. During this time, Don was receiving multiple blood transfusions, allowing doctors enough time to perform numerous tests and finally determine the bleeding was coming from his bowels. Don underwent robotic surgery to repair the small intestine.  Ironically, the surgery caused additional bleeding due to the incisions and the fact that he was on blood thinners.  Again, Don needed blood transfusions to keep him alive. It was about a month after the surgery that the internal bleeding finally stopped. During his hospital stay, Don needed over 50 units of blood, sometimes as many as 4 units in a day. Because of the numerous transfusions, Don developed antibodies that made it very difficult to match his blood type. Thankfully, the doctors were always able to find a donor match. It was a frightening time for Don’s family. They feared he would bleed to death waiting for the next test or finding the next blood donor match. Don expressed his gratitude for all the anonymous blood donors by saying “because of generous, caring people, I was never out of blood. I was able to remain stable long enough that the doctors had time to find and fix the source of the bleeding. My family and I are very grateful to everyone who gave blood.”

 

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